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New Hope for Tuberous Sclerosis Complex Patients and their Families as PAN Launches Co-Pay Assistance Program


Washington, D.C., December 6, 2013 – The Patient Access Network (PAN) Foundation is pleased to announce the introduction of co-pay assistance for Tuberous Sclerosis Complex patients. Underinsured patients being treated for this rare genetic disease will now have streamlined access to life-saving specialty medications.

“PAN Foundation is committed to assisting patients who need our assistance, no matter how small the patient population may be,” explained Dr. Patrick McKercher, PAN President. “We are pleased to be able to provide assistance to TSC patients, providing hope for the patients and help for their families.”

Qualifying patients are eligible to receive up to $7,500 per year, with the ability to apply for additional funds, to cover costs associated with their medications. Patients must have insurance that covers a part of their treatment, must have a household income less than or equal to 500% of the Federal Poverty Level and must reside and receive treatment in the United States.

About Tuberous Sclerosis Complex

Tuberous sclerosis complex (TSC) is a genetic disorder that causes non-malignant tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are living independent, healthy lives and enjoying challenging professions such as doctors, lawyers, educators and researchers. The incidence and severity of the various aspects of TSC can vary widely between individuals—even between identical twins.

About the PAN Foundation

Patient Access Network Foundation is dedicated to providing help and hope to patients who would otherwise be unable to afford high-cost specialty medications. PAN envisions a society in which every individual can access needed medical care, offering hope for a healthy tomorrow. PAN provides assistance through more than 50 disease-specific programs designed to help patients being treated for certain cancers, chronic illnesses, and rare diseases. Through our streamlined application process and state of the art online tools, we are able to ensure that patients are put on the fast track to therapy.