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PAN Foundation Launches Assistance Program for Rare Genetic Disorder, Wilson Disease


Washington, DC, August 14, 2013 – Patient Access Network Foundation continues to broaden is support for patients by launching its newest disease-specific program dedicated to assisting patients being treated for Wilson Disease. Patients of this rare genetic disorder will now have better access to specialty medications without the burden of out-of-pocket costs associated with their treatments.

“PAN is dedicated to providing assistance to patients who don’t otherwise qualify for other safety net programs,” Korab Zuka, PAN Vice President of External Relations and Patient Services explained. “Wilson disease patients often don’t have anywhere to turn when the cost of medications becomes a burden to them and their family, PAN is proud to offer these patients help and hope for a healthier tomorrow.”

Qualifying patients are eligible to receive up to $4,500 per year to cover costs associated with their medications. Patients must have insurance that covers the medication for which they are seeking assistance, must have a household income less than or equal to 500% of the Federal Poverty Level and must reside and receive treatment in the United States.

About Wilson Disease

Wilson disease is a genetic disorder that prevents the body from getting rid of extra copper. A small amount of copper obtained from food is needed to stay healthy, but too much copper is poisonous. In Wilson disease, copper builds up in the liver, brain, eyes, and other organs. Over time, high copper levels can cause life-threatening organ damage. Most people with Wilson disease have no known family history of the disease. A person's chances of having Wilson disease increase if one or both parents have it. About one in 40,000 people get Wilson disease. It equally affects men and women. Symptoms usually appear between ages 5 to 35, but new cases have been reported in people aged 2 to 72 years.

About the PAN Foundation

Patient Access Network Foundation is dedicated to providing help and hope to patients who would otherwise be unable to afford high-cost specialty medications. PAN envisions a society in which every individual can access needed medical care, offering hope for a healthy tomorrow. PAN provides assistance through nearly 50 disease-specific programs designed to help patients being treated for certain cancers, chronic illnesses, and rare diseases. Through our streamlined application process and state of the art online tools, we are able to ensure that patients are put on the fast track to therapy.