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Carcinoid Syndrome

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Program Status

Currently Closed – We are no longer accepting or processing applications for new or renewal patients.


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Assistance Amount

$6,700 per year. Patients may apply for a second grant during their eligibility period subject to availability of funding.


Eligibility Criteria

  1. The patient must be getting treatment for carcinoid syndrome.
  2. The patient must have Medicare health insurance that covers his or her qualifying medication or product. 
  3. The patient’s medication or product must be listed on PAN’s list of covered medications.
  4. The patient’s income must fall at or below 500% of the Federal Poverty Level.
  5. The patient must reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement.)
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See the list of medications covered in this program
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  • Adrucil (fluorouracil)
  • Alferon N (interferon alfa-n3)
  • Cetirizine Hcl (cetirizine hcl)
  • Cimetidine (cimetidine)
  • Cimetidine (cimetidine hcl)
  • Cisplatin (cisplatin)
  • Clarinex (desloratadine)
  • Desloratadine (desloratadine)
  • Diphenoxylate-atropine (diphenoxylate hcl/atropine sulfate)
  • Etopophos (etoposide phosphate)
  • Etoposide (etoposide)
  • Famotidine (famotidine)
  • Fluorouracil (fluorouracil)
  • Intron A (interferon alfa-2b,recomb.)
  • Lomotil (diphenoxylate hcl/atropine sulfate)
  • Loperamide (loperamide hcl)
  • Octreotide Acetate (octreotide acetate)
  • Pegasys (peginterferon alfa-2a)
  • Pegasys Proclick (peginterferon alfa-2a)
  • Pegintron (peginterferon alfa-2b)
  • Pegintron Redipen (peginterferon alfa-2b)
  • Pepcid (famotidine)
  • Ranitidine Hcl (ranitidine hcl)
  • Sandostatin (octreotide acetate)
  • Sandostatin Lar Depot (octreotide acetate, microspheres)
  • Somatuline Depot (lanreotide acetate)
  • Sutent (sunitinib malate)
  • Sylatron (peginterferon alfa-2b)
  • Toposar (etoposide)
  • Xermelo (telotristat etiprate)
  • Zanosar (streptozocin)
  • Zantac (ranitidine hcl)

Diagnosis Codes:

ICD-10: E34.0


About the Disease:

Carcinoid syndrome occurs in about 10% of individuals who have an underlying carcinoid tumor. It manifests with flushing, diarrhea and other symptoms that affect multiple systems in the body.


Source: National Institutes of Health

Related Organizations: