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Fabry Disease

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Program Status

Open - We are accepting applications for new and renewal patients. If your application for assistance is approved you can begin receiving funding immediately.

Assistance Amount

$7,800 per year. Patients may apply for a second grant during their eligibility period subject to availability of funding.

Eligibility Criteria

  1. The patient must be getting treatment for Fabry disease.
  2. The patient must have health insurance that covers his or her qualifying medication or product. 
  3. The patient’s medication or product must be listed on PAN’s list of covered medications.
  4. The patient’s income must fall at or below 500% of the Federal Poverty Level.
  5. The patient must reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement.)
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See the list of medications covered in this program
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  • Fabrazyme (agalsidase beta)
  • Galafold (migalastat hcl)

Diagnosis Codes:

ICD-10: E75.21

 

About the Disease:

Fabry disease, also known as angiokeratoma corporis diffusum, ceramide trihexosidosis or Anderson-Fabry disease, is the most prevalent lysosomal storage disorder that results from the buildup of globotriaosylceramide, a particular type of fat, in the body's cells. It is a rare disease that affects multiple systems.

 

Source: National Institutes of Health