Program Status
Currently Closed – We are no longer accepting or processing applications for new or renewal patients.
The PAN Foundation’s Fabry Disease fund is currently closed. As of June 24, 2019, Patient Advocate Foundation and The Assistance Fund are accepting applications.
For current information, log in to FundFinder.
Assistance Amount
$3,000 per year. Patients may apply for a second grant during their eligibility period subject to availability of funding.
Eligibility Criteria
- The patient must be getting treatment for Fabry disease.
- The patient must have health insurance that covers his or her qualifying medication or product.
- The patient’s medication or product must be listed on PAN’s list of covered medications.
- The patient must be required to travel more than 20 miles (one way) to receive their prescribed treatment. Exceptions to distance requirements are made for patients living in large metropolitan cities.
- The patient’s income must fall at or below 500% of the Federal Poverty Level.
- The patient must reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement.)
See the list of medications covered in this program
Diagnosis Codes:
ICD-10: E75.21
About the Disease:
Fabry disease, also known as angiokeratoma corporis diffusum, ceramide trihexosidosis or Anderson-Fabry disease, is the most prevalent lysosomal storage disorder that results from the buildup of globotriaosylceramide, a particular type of fat, in the body's cells. It is a rare disease that affects multiple systems.
Source: National Institutes of Health
Related Organizations:
