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Inherited Retinal Disease

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Program Status

Open - We are accepting applications for new and renewal patients. If your application for assistance is approved you can begin receiving funding immediately.

 

 

Assistance Amount

$5,800 per year. Patients may apply for a second grant during their eligibility period subject to availability of funding.

 

 

Eligibility Criteria

  1. The patient must be getting treatment for inherited retinal disease.
  2. The patient must have health insurance that covers his or her qualifying medication or product.   
  3. The patient’s medication or product must be listed on PAN’s list of covered medications.
  4. The patient’s income must fall at or below 500% of the Federal Poverty Level.
  5. The patient must reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement.)
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See the list of medications covered in this program
View List  
  • Aquasol A (vitamin a palmitate)
  • Avastin (bevacizumab)
  • Bevacizumab (bevacizumab)
  • Eylea (aflibercept)
  • Lovaza (omega-3 acid ethyl esters)
  • Lucentis (ranibizumab)
  • Luxturna (voretigene neparvovec-rzyl)
  • Omega-3 Acid Ethyl Esters (omega-3 acid ethyl esters)
  • Triklo (omega-3 acid ethyl esters)

Diagnosis Codes:

ICD-10: H31.21, H35.3110, H35.3111, H35.3112, H35.3113, H35.3114, H35.3120, H35.3121, H35.3122, H35.3123, H35.3124, H35.3130, H35.3131, H35.3132, H35.3133, H35.3134, H35.3190, H35.3191, H35.3192, H35.3193, H35.3194, H35.3210, H35.3211, H35.3212, H35.3213, H35.3220, H35.3221, H35.3222, H35.3223, H35.3230, H35.3231, H35.3232, H35.3233, H35.3290, H35.3291, H35.3292, H35.3293, H35.351, H35.352, H35.353, H35.359, H35.361, H35.362, H35.363, H35.369, H35.371, H35.372, H35.373, H35.379, H35.50, H35.51, H35.52, H35.53 H35.54, H35.89, H44.20, H44.21, H44.22, H44.23, H44.2A1, H44.2A2, H44.2A3, H44.2A9, H47.211, H47.212, H47.213, H47.219, H47.22

 

About the Disease:

Inherited retinal disease (IRD), also known as inherited retinal disorder, is a disorder caused by an inherited gene mutation which can result in vision loss or blindness. IRD is a rare disease that affects the nervous system. Subtypes include choroideremia, cone road dystrophy, juvenile macular degeneration, leber congenital amaurosis and retinitis pigmentosa.

 

Source: National Institutes of Health

 

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