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Tuberous Sclerosis Complex

Get Help with Your Treatment

Apply Online or call 1-866-316-7263

 

Program Status

Fully Allocated – We are no longer accepting or processing applications for new or renewal patients.

 

The PAN Foundation’s Tuberous Sclerosis Complex fund is currently fully allocated. As of September 20, 2017, Good Days’ Subependymal Giant Cell Astrocytoma in patients with Tuberous Sclerosis fund is accepting applications.

Assistance Amount

$2,300 per year. Patients may apply for a second grant during their eligibility period subject to availability of funding.

Eligibility Criteria

  1. The patient must be getting treatment for the disease named in the assistance program to which he or she is applying.
  2. The patient must have health insurance that covers his or her qualifying medication or product. 
  3. The patient’s medication or product must be listed on PAN’s list of covered medications.
  4. The patient’s income must fall at or below  500% of the Federal Poverty Level.
  5. The patient must reside and receive treatment in the United States or U.S. territories. (U.S. citizenship is not a requirement.)
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See the list of medications covered in this program
View List  
  • Afinitor (everolimus)
  • Afinitor Disperz (everolimus)
  • H.P. Acthar (corticotropin)
  • Rapamune (sirolimus)
  • Sabril (vigabatrin)
  • Sirolimus (sirolimus)
  • Zortress (everolimus)