Anyone can struggle with their mental health, but living with a chronic condition or rare disease can be especially challenging on your mental wellbeing.
We asked the PAN Foundation patient community to share what they’re doing to manage their mental health and wanted to share seven tips for patients, by patients. We thank them for sharing their advice and encourage you to use the tips that work best for you.
Disclaimer: The PAN Foundation is not a mental health provider. If you or someone you know is struggling, please call or text 988 or use the chat at 988Lifeline.org to receive free emotional support from the 988 Suicide and Crisis Lifeline.
Seek support in others when needed
One of the top tips that patients shared was to make sure you’re not isolating yourself. Whether it’s a mental health professional, support group, family member, or friends it’s important to reach out for support. Being proactive and having a support system that you can lean on means you’ll have the help you need when things get tough.
Try a new activity that brings you joy
Keeping your mind and body active can help shift your focus when things feel tough, and help you find the fun in your day. Your hobby can be as low impact as you need but try to find something you enjoy doing. Some hobbies that our patients enjoy include playing games, reading, gardening, doing puzzles, listening to music, birding, painting, and more!
Take care of you (and others as needed)
Practicing self-care is critical. Taking care of yourself first helps you be the best you can be for yourselves and your loved ones. Self-care can mean different things for different people, so focus on what your mind and body need in the moment—whether it’s an activity, therapy session, or nap! While taking care of yourself always comes first, some people have also found it helpful to be able to care for others, from plants to pets to volunteering.
Mental health is health. Mental health issues are health issues.”
Mary-Ellen Harwood, PAN Foundation grant recipient
Change your scenery
Getting out of the house can be positive for your mental health. Even if it’s only moving from your couch to your backyard, many patients noted the importance of getting outside when you can. Short outings like going to the grocery store, taking a walk around the neighborhood, taking a leisurely drive, or even sitting outside and watching the clouds go by can help improve your mood.
Exercise when possible
Many of our patients mentioned the importance of exercise. Finding a few minutes each day to get moving can be both fun and helpful to your mental health. Some recommendations include short walks, gardening, yoga, pickle ball, swimming, and Tai Chi. Just remember, listen to your body and don’t push yourself more than it can handle. Check with your doctor if you’re unsure if an activity is safe for you to do.
Focus on the positive and stay grounded
Dealing with health challenges can affect you both physically and mentally. While there are going to be rough days, many patients find it helpful focusing on the positive over the more negative aspects of their life. Some like to practice gratitude, reminding themselves to think about the good things that happened each day over the bad. Others find strength and comfort through spiritual activities like faith, religion, mediation, or even general mindfulness. It can be helpful to remember not to worry about what is out of your control and just to focus on being present and mindful. No matter what, take things day by day, make time for yourself, and don’t overwhelm yourself with too many appointments or information.
Have patience with yourself
Finally, have patience with yourself and your body. You might have to do things a little differently than you used to, and that’s normal. You can let yourself feel your feelings and remember to have compassion for yourself. Not all days will be good days, and that’s ok, but even on the bad days you’re never a burden and it’s ok to ask for help and support.
Looking for resources?
For additional resources on managing your mental health and finding support check out our resources for mental health webpage.